About

We are Nora's parents, and this blog exists largely because of her.

Nora was born with hypoxic-ischemic encephalopathy (HIE) and lives with epilepsy. She doesn't have an official cerebral palsy diagnosis, though we see many signs that concern us. Her development is far behind what's typical for her age — and every day, she works harder than most of us ever have to build new skills.

We're grateful that our health insurer covers her approved care: an appointment every weekday for physiotherapy, speech therapy, or occupational therapy. But we want to give her more than that. We are planning several additional therapies that we cannot afford on our own — among them a possible second Muse Cells treatment (we paid for her first treatment ourselves), a red-light device, initial hyperbaric oxygen therapy sessions, and DMI training so Nora's mother can support her therapy work at home. Several of these are still under discussion with Nora's clinicians, and we only pursue what we've confirmed is suitable for her.

We'll use this blog to share how it goes: Nora's progress, our decisions, and — because trust matters to us — the actual costs of what we do.

Beyond that, this is simply our family's space. We'll also write about what we learn along the way as parents, the things that keep us going, and whatever else seems worth writing down. Nora's story comes first, but it isn't the only one we have to tell.

Thank you for being here.